The Arachnoid Cyst Foundation
The Arachnoid Cyst Foundation
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Catherine Clay
The Arachnoid Cyst Foundation
Po Box 4265
Burbank, Ca 91503

When you do call please be aware that this is my home and I will answer "Hello!"
When you are full of despair and need someone just to listen and you want to hear I've got the ear. But I need HELP too to build this fledgling foundation and I NEED to help you navigate through this nightmare of having a brain tumor nobody wants to acknowledge. You won't get an answering machine on Sundays, it's me! Please be aware of the time difference and respect the hours since I have a 5 yr old. Right now where I live it is about: 05:52 am. So DON'T CALL ME NOW!

I would also appreciate it if you could sign up with
Vonage so I can get a month free.
My Disclaimer

Your donations will help support our cause. We are waiting for the last piece to finish up the complete non profit status but if you need a number then I have one!.

Our preferred method of Donation is to sign onto your bank's website and then write an electronic check. I don't even think they charge you for postage. That way we get the full amount instead of what paypay takes out as well.






PLEASE  show you really give a fuck and donate all those extra bucks!  your time, enegry and any effort into helping me. I am 501(c)

LeslieU.'s Story

Hi. My name is Tracy and I live in Valleyview Alberta Canada. I am 28 years old and was diagnosed with an arachnoid cyst behind my left eye.

It has caused me to have grand mal seizures and pressure behind my left eye.

My neuorologist has told me not to worry about it.

They may remove it or something in 5 years, unless I have another seizure. He has increased my dilatin medication for the seizures, but I am not sure that was the awnser.

I was diagnosed on march 1/2004. I go back to see him in febuary 2005. He Also said I still may not be able to drive then (he pulled my drivers license in December when I had my seizure).

I tried to ask him some questions but all he said was don't worry about it, its no big deal. I don,t know what to do. If you could offer some advice, that would be great. (the cyst is about the size of a tooney).

Thank you,
 
Tracy Whitmer

 

Tracy,

I think you know that you are not feeling well. I don't know what to tell you what to do up there in Canada. These are not cysts that you want to mess around with.

Your cyst is in a delicate place. That's close to the pituitary gland which is the gland that controls every gland in your body. If you leave it alone I fear that there is long term central nervous system damage.

I would ask for other opinions and find a doctor that has, indeed, treated his patients that have had Arachnoid Cysts.

Catherine

 

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The Arachnoid Cyst Foundation
The Arachnoid Cyst Foundation
The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 4265
Burbank, CA 91503

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