Our Stories

In October 2001 I was diagnosed with a 9 CM Right Temporal Subarachnoid cyst. I had been having some problems with head aches and vomiting when they did a CAT scan and found it.
I was told by the neurosurgeon that we would just keep an eye on it.( I have an eye on it, the right eye) I have MRI's and MRA done yearly.

My symptoms: Occasional headaches
Forgetfulness
Poor balance
Poor speech at different times, not able to say some words.
Can see a word that I want to say but can't remember how to say it at times.
Bad concentration, not always able to focus on a task.
Always tired and sleep a lot.
I have the worst time with remembering faces and conversations.
Comprehension, can not read a book and remember what was read fully or read an assignment and have a clear understanding as to the content.
Get stressed easily and have bouts of depression.

In short, after I was diagnosed I was told to just leave the cyst alone and to get yearly checkups. I get really frustrated that I can not focus on things at times or when I forget to do something.

I live a very normal life. I work as a systems engineer by day and own my company involving real estate investing.

Much like all of the others that have posted on the site, I too searched everywhere to get more information about my condition. There just isn't much out there and the doctors are quick to dismiss the findings. Personally I look at my MRI's and see that I am missing a huge portion of my brain and wonder how can they dismiss the findings and not want to fix it.

Sooner or later I will get frustrated enough and demand some action, but for now, I am just scared to have a shunt put in.

I am currently completing my Bachelors Degree in Business Administration and one of my classes is psychology. In the class we started into the section that deals with the brain and how it all functions together. I disclosed my condition to the class and some people were curious about it and that is when I found your site. It pleases me that someone has developed such a site. NICE WORK!!

I can be reached at dallasblu@aol.com

Sincerely,

Sheri

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Some people just send snippets so I put them all together here.

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DOCTORS

The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 66820
Los Angeles, Ca 90066
1-(800)-493-5022
11am-10pm PST Weekdays
PLEASE REALIZE THE TIME DIFFERENCE
Please read through this site before calling as your answers very well could be here already.
No we do not have printed materials, you will have to print out this site.
Amy and Catherine are giving telephone suppport at this time. Amy for emotional support and Catherine for MRIs.
If you didn't find the info you need on this site or arachonidcyst.net please do call.
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This site was designed and is maintained by Miss Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back!