Back when I was much younger, I lived out in the woods. I had a a neighbor with an old fence, and from the fence there was an old shed. I used to walk across the fence every so often never caring about the drop if I fell. Then the day came I tripped and fell.

I fell into a web, a web so large it went across the entire length of the fence and shed, about 2 to 3 feet deep. I was covered in spiders, I was bitten by a poisonous one. I don't need to tell you that I'm terrified of spiders.

So, you could imagine how I felt when the doctor told me that I had an ARACHNOID CYST. But seriously, I suffer from one in my pineal fossa region. It has mass effect which means it putting pressure on different parts of my brain.

I had this discovered back in 1998, with a ct scan. The doctors told me that I had a brain cyst. Not large enough for problems but they wanted to monitor it. Thanks to health insurance changes the new insurance wouldn't help me.

So, for years I tried to get doctor's to help me. I suffer from horrible pain, in my body. I lose all sensation in my arms and legs, every night. I can't sleep without sleep aids. If I didn't I would be awake for days. My vision is getting worse and worse now. I am going to be needing bifocals with my next visit. Which I have put off for now, because I am to young for bifocals.

I've been in the hospital more times than I wish to count. Getting sick all the time is not fun. I just got a doctor to help me and it looks good for the first time in a long time. Don't let a doctor tell you that it's only coincidental. That is a line of bullshit.

Doctor's really don't know because they don't have the research. I've been sick for so long now, and have had every test done imaginable. These things are bad and doctor's don't do nearly enough. But don't quit trying to get the help you need. It took me years and now I have one of the best.

All I can do now is hope and wait.

But please help Catherine's foundation. She has a heart of gold and truly cares. If people don't try then nothing will happen. I am currently writing my congressman in hopes that he can help. People don't need to suffer like this.

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YOUR
"FEELINGS"

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TERRITORY
Join us at arachnoidcyst.net so others can feel your pain and we can get "them" to listent to us~

PINEAL

Deborah(4)

POSTERIOR
FOSSA

Bev(6)

VENTRICLES

Steven(7)

RIGHT POSTERIER

Laureen(7)

Dani(1)

Shauna(2)

POSTERIOR FORAMEN

Jessica (5)

RIGHT
PARIATAL

Marge(2)

Babs &
Journal

CEREBELLUM
Michelle(3)

Bill L. (2)

Tom B (15)

Adrianne

Jo-Lin(16)

Lisa

Amy

BRAIN STEM

Robin

CORPUS
CALLOSUM

Jennifer (2)

OCCIPITAL
LOBE

Rashad(3)

LEFT
TEMPORAL
(MOST COMMON)

Leslie(11)

Vicki(16)

Chris(2)

Warren(2)

Courtney(7)

Robert(3)

LEFT OCCIPITAL

Francine

MIXED STORIES

Some people just send snippets so I put them all together here.

You can help the most by adding your story to arachnoidcyst.net

DOCTORS

The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 66820
Los Angeles, Ca 90066
1-(800)-493-5022
11am-10pm PST Weekdays
PLEASE REALIZE THE TIME DIFFERENCE
Please read through this site before calling as your answers very well could be here already.
No we do not have printed materials, you will have to print out this site.
Amy and Catherine are giving telephone suppport at this time. Amy for emotional support and Catherine for MRIs.
If you didn't find the info you need on this site or arachonidcyst.net please do call.
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This site was designed and is maintained by Miss Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back!