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Marvin


(years diagnosed)

THE BABES

Ema(2)

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heridetary...
her brother has one too
.
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RIGHT
TEMPORAL & PARTERIAL

Katie D (6)



                        100+ other people know it's not "all in your head" Please join me in keeping it real.

My name is Marvin, It's a long story about my condition but I'll try to be short yet give you as much in detail as i can.

I'm a Service connected disabled veteran, 36 years old and I've been diagnosed with interverbral disc syndrome for almost 10 years from and injury that happened while in the Army.

For the last five or so years my condition has manifested to where my legs have gotten weak and the complications with my back are significantly worse I'm always sore in my lower back my legs ache and just this year (Feb.) I had a Neuro Exam and the doctor diagnosed me with having paralysis of the sciatic nerve (both legs) with decreased pin sensation.

Well I kept complaining that there is more to it that what the doctors are telling me. So I had an MRI exam in Sept. and that's when I got a copy of the results and they found the arachnoid cyst in my spinal canal. But before the arachnoid cyst was found my legs gave out back in june causing me to fall down my steps here at home causing me to rupture my Achilles tendon in which I had repaired in July, as a matter of fact I was released from the Hospital on the fourth of July.

Like I said my legs are unstable, and most days It takes a lot out of me to drive for a period over an hour. My wife says all I do anymore is sleep and lay around, but trust me she doesn't know what it feels like to be in constant pain everyday and most days it hurts to even walk or move around. It bother me to even get out of bed and and make a pot of coffee or drive to the store for some groceries.

I've gotten to the place where I've stopped working and have applied for disability benefits. I'm not going to put myself and health in further jeaporady by going out doing something I know I can't.

For years I have put aside how I feel and pretended that I can work with this problem but when I come home I'm irritable and short tempered and just frustrated because I flat out hurt and ache. there have been times when I would lay in the bed and cry because my legs are aching something terrible....it's hard to explain what it feels like when your legs ache and throb.

I'm on long acting morphine and oxycodone. And I can't miss taken this medicine because if I do I can't sleep or rest comfortably. I haven't met with my doctor yet to find out how bit it is or just how embedded it is in my spinal canal.

The Veterans Administration is slow about getting patients in for treatment but soon I'll know the full extent to what is going on with me.

Feel free to post this on your site. It's a coincidence that I printed a story about Kathi off your website last week and I've already heard form her. I just joined this yahoo group yesterday and It was just meant form me to join this group because I
have already browsed your website and will be going back to it...so if you want go ahead and post this and maybe I can learn more about this disorder from you
Kathi and anyone else that can help.

Thanks again...

 

 

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MIXED STORIES


Some people just send snippets so I put them all together here.

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The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 66820
Los Angeles, Ca 90066
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This site was designed and is maintained by Miss Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back!