Your donations will help us to grow. We are a foundation run by other AC sufferers. Every buck counts! Please help us and Donate this season.

Amazon Honor System
Click Here to Pay Learn More

Laureen


(years diagnosed)

THE BABES

Ema(2)

Ruben(2)

Daniel(2)


Katie(3)

Mom(11)

Justin(3)

Jessica(1)

Meg

Hobie(4)

Tanner(3)

Jacob(3)

Chance(3)

Hunter(2)

Sara(2)

Jacob(2)

Anon

Logan (4)

Mandy(4)

Mandi(7)
heridetary...
her brother has one too
.
Tracey


THE ADULTS


SPINE

Kathi (2)

Marvin(1)

Loretta(2)

Anabel(4)

Carrie

MIDDLE

Kate(5)

Catherine(me) &
Journal

Mare(3)

Yvonne(5)

Jason(11)

Angie(1)

Pam(10)

Nate(7)

Kevin(23)

Sally(1)

Theresa

Cin(2)

LeslieU. (1)

Meagan (3)

Lavona(2)
*hereditary

Royalyn(2)

Rita(5)

Justin(7)

Jill (1)

Barry


Linda

Jen D

RIGHT TEMPORAL

Telisha(1)

Darren(5)

Andrew(4)

Sheri(4)

RIGHT
TEMPORAL & PARTERIAL

Katie D (6)



                        100+ other people know it's not "all in your head" Please join me in keeping it real.

Hi, my name is Laureen I am a body builder and I am from New Hampshire. I have had headaches most of my life and like most people thought they were just migraines. About 5-6 years ago they started to get extremely intense.

I had what the doctors and myself thought was vertigo and was treated for migraines and vertigo.

About 2 yrs later I tried to get out of bed and fell to the floor, I couldn't stand up. My legs wouldn't work.

My husband called the Dr. She took me right in and ordered an MRI. Two days later I had the MRI. The next night we got the awful news. I had a Right Posterior Arachnoid Cyst.

I went to Dartmouth Hitchcock Medical Center, one of the best hospitals in the country. They read my MRI and scheduled me for surgery the next week. A couple of days later I had my very first seizure. I don't remember a thing. All I remember is waking up to my friend screaming my name in my face. I thought she was nuts, totally. She told me what had happened. I couldn't believe it. I went and picked up my kids from school and we went home.

I called the Dr. and she put me on anticonvulsants. They removed the cyst, very painful surgery, different pain than the awful headaches. Kinda relief to have a different pain rather than the everyday all day headaches. After about 5 days I went home, couldn't walk on my own, couldn't talk very well, went through 3 weeks of therapy and was better, or so I thought.

About three months later the headaches returned, the Dr's thought it was nerve pain from the surgery. I accepted that diagnosis until about two months later and I was still in severe pain. The Dr. ordered another MRI and guess what... It grew back to the same size as when they took it out. Talking about BAD LUCK!!

Well now it is two and half years later and I still have headaches everyday and not full blown seizures but what I call "Loss Of Time". I can't remember where I am or where I am going. Pretty scary sometimes. They have me back on my seizure meds and they also have me on Periactin. Between the two and Migrinal Nasal Spray, I can keep my headaches down to a dull roar. They said they may never be able to relieve my headaches completely but I will take this over the Most Piercing Headaches Ever.

In August of this year the Dr. From Dartmouth admitted me for 5 days and did what they call the DHE Protocol. They hook you up to IV's and give you three doses of DHE everyday for 5 days. It helps to calm the inflammation in your head. It did. Then they send you home with the DHE but in nasal spray called MIGRINAL 4 mg. It works good.

I hope this helps someone, I feel soooo much better.

My symptoms include:
chronic fatigue
depression
insomnia
weight gain
phonophobia
photophobia
night terrors
mouth sores
dizzy spells
loss of time (seizure)

 

 

BLOG
YOUR
"FEELINGS"

MARK YOUR
TERRITORY

Join us at arachnoidcyst.net so others can feel your pain and we can get "them" to listent to us~

PINEAL

Deborah(4)

POSTERIOR
FOSSA

Bev(6)

Dawn(2)

Christi (6)

Rebecca

Karen(2)

Angelea (7)

Owen(2)

Amy(3)

Amy(5)


Dana

VENTRICLES

Jan(1)

Steven(7)

RIGHT POSTERIER

Laureen(7)

Dani(1)

Shauna(2)

POSTERIOR FORAMEN

Jessica (5)

RIGHT
PARIATAL

Marge(2)


Babs &
Journal

CEREBELLUM
Michelle(3)

Bill L. (2)

Tom B (15)

Adrianne

Jo-Lin(16)


Lisa

Amy

BRAIN STEM

Robin

CORPUS
CALLOSUM


Jennifer (2)

OCCIPITAL
LOBE

Rashad(3)

LEFT
TEMPORAL
(MOST COMMON)


Leslie(11)

Vicki(16)

Chris(2)

Warren(2)

Courtney(7)


Robert(3)

A Husband's
Plea(2)

Don(5)

Melody(1)

Debbie(2)

Henry(13)

Sand(2)

Mat(4)

Alex(7)

Bill(3)

Olene(21)

Deb(2)

Stéphane(2)

Karen(3)

Lance(2)

Lisa(4)

Christine(7)

Richard (3)

LEFT OCCIPITAL

Francine


MIXED STORIES


Some people just send snippets so I put them all together here.

You can help the most by adding your story to arachnoidcyst.net

The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 66820
Los Angeles, Ca 90066
1-(800)-493-5022
11am-10pm PST Weekdays

PLEASE REALIZE THE TIME DIFFERENCE
Please read through this site before calling as your answers very well could be here already.
No we do not have printed materials, you will have to print out this site.
Amy and Catherine are giving telephone suppport at this time. Amy for emotional support and Catherine for MRIs.
If you didn't find the info you need on this site or arachonidcyst.net please do call.
Please donate


Amazon Honor System
Click Here to Pay Learn More

 
This site was designed and is maintained by Miss Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back!