Hi,
my name is Laureen I am a body builder and I am from New Hampshire.
I have had headaches most of my life and like most people thought
they
were just migraines. About
5-6 years ago they started to get extremely intense.
I
had what the doctors and myself thought was vertigo and was treated
for migraines
and vertigo.
About
2 yrs later I tried to get out of bed and fell to the floor, I couldn't
stand up. My legs wouldn't work.
My
husband called the Dr. She took me
right in and ordered an MRI. Two days later I had the MRI. The
next night we got the awful news. I had a Right Posterior Arachnoid
Cyst.
I
went to Dartmouth Hitchcock Medical Center, one of the best hospitals
in the country. They read my MRI and scheduled me for surgery the
next week.
A couple of
days later I had my very first seizure. I don't remember a
thing.
All I remember is waking up to my friend screaming my name
in my
face.
I thought
she was nuts, totally. She told me what had happened. I couldn't
believe it. I went and picked up my kids from school
and we went home.
I
called the Dr. and she put me on anticonvulsants. They removed
the cyst, very painful surgery, different pain than the awful
headaches. Kinda
relief to have a different pain rather than the everyday
all day headaches. After about 5 days I went home, couldn't walk
on
my own, couldn't talk
very well, went through 3 weeks of therapy and was better,
or so I thought.
About
three months later the headaches returned, the
Dr's
thought
it was nerve pain from the surgery. I accepted that diagnosis
until about two
months later and I was still in severe pain. The Dr. ordered
another MRI and guess what... It grew back to the same size
as when they
took
it out.
Talking about BAD LUCK!!
Well
now it is two and half years later
and I still have headaches everyday and not full blown
seizures but what
I call "Loss
Of Time". I can't remember where I am or where I
am going. Pretty scary sometimes. They have me back on
my
seizure meds and they also
have me on Periactin. Between
the two and Migrinal Nasal Spray, I can keep my
headaches down to a dull roar. They said they may never
be able to relieve my headaches completely but I will
take this over the Most
Piercing Headaches
Ever.
In
August of this year the Dr. From Dartmouth admitted me for 5 days
and did what they call the DHE Protocol.
They hook you up to IV's
and give
you three doses of DHE everyday for 5 days. It helps
to calm the inflammation in your head. It did. Then they send
you home with the DHE but in nasal
spray called MIGRINAL 4 mg. It works good.
I
hope this helps someone, I feel soooo much better.
My
symptoms include:
chronic
fatigue
depression
insomnia
weight gain
phonophobia
photophobia
night terrors
mouth sores
dizzy spells
loss of time (seizure)