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Kevin


(years diagnosed)

THE BABES

Ema(2)

Ruben(2)

Daniel(2)


Katie(3)

Mom(11)

Justin(3)

Jessica(1)

Meg

Hobie(4)

Tanner(3)

Jacob(3)

Chance(3)

Hunter(2)

Sara(2)

Jacob(2)

Anon

Logan (4)

Mandy(4)

Mandi(7)
heridetary...
her brother has one too
.
Tracey


THE ADULTS


SPINE

Kathi (2)

Marvin(1)

Loretta(2)

Anabel(4)

Carrie

MIDDLE

Kate(5)

Catherine(me) &
Journal

Mare(3)

Yvonne(5)

Jason(11)

Angie(1)

Pam(10)

Nate(7)

Kevin(23)

Sally(1)

Theresa

Cin(2)

LeslieU. (1)

Meagan (3)

Lavona(2)
*hereditary

Royalyn(2)

Rita(5)

Justin(7)

Jill (1)

Barry


Linda

Jen D

RIGHT TEMPORAL

Telisha(1)

Darren(5)

Andrew(4)

Sheri(4)

RIGHT
TEMPORAL & PARTERIAL

Katie D (6)



                        100+ other people know it's not "all in your head" Please join me in keeping it real.

It all began one day in summer school when I was about 8 years old. 

I had told my mom that I had a headache and stomach ache, but she did not believe me being that it was the first day of summer school, as pretty much as any mom would.  So I went to school and about a few hours later I called home and said that I was still sick. 

She came to pick me up.  The flu like symptoms went on for a few days and my mom called the pediatrician and we went and the doctor, who was old and out of touch with medicine.  He gave me some medicine and we went home.

This continued for a few weeks and my parents got alarmed and they talked to a neighbor who was a doctor, and he said to send me to Children's Memorial Hospital in Chicago. 

We went and they did a cat scan on my head, and they found a arachnoid cyst the size of a golf ball on my pituitary gland. 

They operated immediately, putting in a vp shunt to relieve the pressure, however they could not get to the cyst. After a few more surgeries, and about six months later I left the hospital. 

However I was not completely the same. 

They then diagnosed me with Hypopituitarism, which meant I would have to take growth hormone, testosterone,  and a few other drugs.   Due to the fact that I have a shunt I would also have to have quite a few revisions over the years.

 

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TERRITORY

Join us at arachnoidcyst.net so others can feel your pain and we can get "them" to listent to us~

PINEAL

Deborah(4)

POSTERIOR
FOSSA

Bev(6)

Dawn(2)

Christi (6)

Rebecca

Karen(2)

Angelea (7)

Owen(2)

Amy(3)

Amy(5)


Dana

VENTRICLES

Jan(1)

Steven(7)

RIGHT POSTERIER

Laureen(7)

Dani(1)

Shauna(2)

POSTERIOR FORAMEN

Jessica (5)

RIGHT
PARIATAL

Marge(2)


Babs &
Journal

CEREBELLUM
Michelle(3)

Bill L. (2)

Tom B (15)

Adrianne

Jo-Lin(16)


Lisa

Amy

BRAIN STEM

Robin

CORPUS
CALLOSUM


Jennifer (2)

OCCIPITAL
LOBE

Rashad(3)

LEFT
TEMPORAL
(MOST COMMON)


Leslie(11)

Vicki(16)

Chris(2)

Warren(2)

Courtney(7)


Robert(3)

A Husband's
Plea(2)

Don(5)

Melody(1)

Debbie(2)

Henry(13)

Sand(2)

Mat(4)

Alex(7)

Bill(3)

Olene(21)

Deb(2)

Stéphane(2)

Karen(3)

Lance(2)

Lisa(4)

Christine(7)

Richard (3)

LEFT OCCIPITAL

Francine


MIXED STORIES


Some people just send snippets so I put them all together here.

You can help the most by adding your story to arachnoidcyst.net

The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 66820
Los Angeles, Ca 90066
1-(800)-493-5022
11am-10pm PST Weekdays

PLEASE REALIZE THE TIME DIFFERENCE
Please read through this site before calling as your answers very well could be here already.
No we do not have printed materials, you will have to print out this site.
Amy and Catherine are giving telephone suppport at this time. Amy for emotional support and Catherine for MRIs.
If you didn't find the info you need on this site or arachonidcyst.net please do call.
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This site was designed and is maintained by Miss Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back!