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Henry
(years diagnosed)

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                        100+ other people know it's not "all in your head" Please join me in keeping it real.

My husband Henry Stanton and I live in the UK and have been seeing neurosurgeons in this country over the last couple of years but I am not satisfied I am getting answers and getting increasingly worried.

Henry was born with an Arachnoid cyst to his brain (LEFT SIDE) - he used to be a racing driver and following some accidents about 12 years ago he had concussion and the cyst was operated on - they wanted to put a shunt in but couldn't because the fluid was too thick so they manually drained it. He did not have any symptoms for years but in the last 2 years he has suffered from sometimes disabilitating symptoms such as acute tiredness , numbness on the left side of his brain and feeling of passing out followed by rest/sleep

When he sees the doctors and has had CAT scan earlier this year they said he is not having pressure headaches - well, he knows that as he knows how to compare from the headaches he had experienced prior to the operation but he nonetheless has got symptoms and they are not only scary but are preventing him from living normally at times.

I really want some answers - want to know whether these symptoms are at all recognized - I want to have opinions expressed as to what the causes could be or what can be done to help this

I hate the fact that nothing is suggested/done

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