Have you found any of this information useful to you? If I took the time to find these men then can you donate a few dollars? Please?
Have you become a community member to Arachnoidcyst.net?
If you want more details, more information (there is more to this site but if you are content with not donating at least $20 then I'm comfortable not sharing EVERYTHING with you. Have you seen how some "patient" sites handle this stuff out there? What other site has this much info? I want to provide more pubmed full articles, etc for more education and that costs money...) or a quality doctor near you please donate some bucks to our cause and I will assist you further. If you like what you have read then please help me help you and all the people coming down the line especially those less fortunate than you.
I never in my wildest dreams imagined that there would be so many people that needed help, needed a shoulder to cry on, someone to talk things through and someone to try to keep all the stories of people calling straight in their head like how many people have died, had strokes, have kids with "autism" or some other kinds of diseases when it's really just too much Intracrainl Pressure.
I'm trying my best to be a service to all of those in need and in greed. I've been used, abused and cared for. Some people are blessings, others are curses. Which one are you going to be? Tax my energy until there is nothing left of me or build me up so I help the others become somebody?
Someone asked me recently if we ever got better. We degeneratively get worse but your attitude is what makes you and if you hold my hand, have a sick sense of humor and just remember it's only life every once in a while and you can take it where you want then maybe you can learn to enjoy your own. You will never be who you thought you were but maybe you can learn to accept the person you are becoming. Be gentle with that person. Love, Catherine Clay
Here is a small list of amazing doctors that have saved people's lives.These are men I trust, except for Dr.s Bailes, Foody, Kern, and Van Beijnum I've met all of them. I do not know Dr. Jho and haven't met anyone that has had surgery with him, either so if you have please please please e-mail me. If you would like to recommend a doc please e-mail me.
If you
want more information on these doctors please make a donation (it's taken me years to compile this list and these experts will shave years off your life). And folks, when you contact these people please try and be considerate so I don't get nasty grams from these people's offices. Ask first if they are willing to look into your problem, they will find out if they take your insurance (if you don't have it... beg, borrow or steal) and you will get the attention you deserve if you WRITE a letter and mail it to the office enclosing your
1.
A MRI with a Tesla rating over 1.5 (key) reports and scans, both spinal and brain
2. See an
Endocrinologist to do a blood work up with HGH, Cortisol and hormones being a look at
3. See a Neuro-optomitrist and have a visual field test done.
4.
See an Neuro-ENT and have an audiogram.
5. Consider seeing a neuropsychologist and having a MMPI done and seeking cognitive therapy as well because it's hard to want to live when your brain is telling you to die.
Some of these people are kind enough to give phone consultations, the ones that don't are noted.
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West Coast Neurosurgeons
Dr. William Caton III. 50 Alessandro Place, Suite #330, Pasadena 91105 (626) 793-8194
He and his associates have seen over 500 AC patients and have done approximately 100 surgeries.
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Dr. Michael L. Levy, PhD
8010 Frost Street, Suite 502 San Diego, Ca 92123
(858) 966-8574
mlevy@chsd.org
Director of Pediatric Neurosugery (believes in fenestration and will see adults with Arachnoid Cysts)
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Dr. Shahinian is the Director of the Skull Base Institute and he uses a laser technique to remove the cell walls of an Arachnoid Cyst.
"The best beside manner"
DeYonne
http://www.skullbaseinstitute.com
About Skull Base Institute and More information
866-266-9627
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| Midwest
Dr. Lawrence Foody 616-454-3465
414 Plymouth Ne
Grand Rapids, Michigan 49505
Does Laser Removal.
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Dr R.Lee Kern (thank you for loving our site :)
The Neurological Group of Chattanooga.
(423) 265-2233 * 1010 East 3rd St *Chattanooga, TN 37404
After 13 years one of us (after going to the Cleveland clinic) had to have her AC worked on again. They thought she had a tumor but it ended up being scar tissue from the last surgery. This man helped her out but the fenestration didn't take so...
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John Joseph Guarnaschelli
Neurosurgical Group
225 Abraham Flexner Way Ste 505
Louisville, KY 40202-1846
(502) 584-4121
Dr. Guarnaschelli is a hunk of a doctor. He's one of Dr. Caton's comrades and I saw him when I was 19 after my first brain surgery when both my sister and my mom were doing chemo and he asked if I wanted to remove some of the fluid left behind from the aspiration I had JUST had to which I went out to my car and cried and put away the inevidable because I couldn't put my fmaily through that again when everyone else was suffering. He operated on Wendell Cherry, the head of Humana before his passing. He's probably the best neurosurgeon if you are in the midwest as I am positive if need be he can consult Dr. Caton if you were to ask.
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J Van Beijnum
Department of Neurosurgery, University Medical Center, Utrecht, The Netherlands |
EUROPE
I'm not pushing laser doctors but they are cleaner and have fewer incidents of nastiness and a likelyhood of a one shot surgery. Someone that took the time to write an article for Pub Med might be wroth a look.
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Is Dr. Bailes' worth the trouble? Do a google on him... I only know of one patient he has operated on and that patient didn't know what was done to him only that his Arachnoid Cyst was operated on.
If he only wants to communicate with you via your doctor and won't talk to you on the phone and you live 7 states away I would come to California. |
East Coast
We respectfully request that Dr Bailes' email & faculty office contact information be removed from your website. While we are grateful that his former patients have recommended him as an expert, Dr Bailes can't provide telephone consultations. We also have HIPAA issues with email confidentiality.
New patients would need to be referred for surgical evaluation by their current physician. The referring physician can schedule an appointment by calling 1-304-598-4800. Some patients may encounter insurance issues such as being out of network.
Thank you for your assistance in this matter. We applaud your efforts to provide patient education and peer support for this diagnosis.
Becky Kessler
Administrative Secretary
Dept of Neurosurgery
(304)293-1736 |
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