I discovered I had an arachnoid cyst because my hands went dead and I went to see my GP. One of the doctors booked me to see a neurologist. She thought it was carprel tunnel syndrome. I doubted I would ever have that because I didn't feel I had it. She ran a MRI just to check to see what was going on.

Then they saw the cyst in my neck. Then I had a brain MRI and it came back positive for an AC. Then I went to see the Neurosurgeon and he told me it was no big deal. He did a work up on me which included checking my reflexes and the "field sobriety test".

This is so exhausting and hard and I am disgusted because doctors can't say "I don't know, I can't help you." My GP is like a father to me. He's in his seventies and has gone out of his way to help me out.

I have to have a neck MRI after six months and has been moved back from May to June 2004.

I am so frustrated with my care because I am sick of waiting. I have trouble articulating my words, understanding social situations. I have OCD and am a type A personality. I started having "panic" attacks over 30 years ago and just suffered.

I've been in psychotherphy for 7 years and it's really not helping any.

I had a severe trauma to the head when I was 7. Then I had 2 grand mal and a petit mal seizures.

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DOCTORS

The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 66820
Los Angeles, Ca 90066
1-(800)-493-5022
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No we do not have printed materials, you will have to print out this site.
Amy and Catherine are giving telephone suppport at this time. Amy for emotional support and Catherine for MRIs.
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This site was designed and is maintained by Miss Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back!