Your
donations will help us to grow. We are a foundation run by other AC sufferers. Every buck counts! Please help us and Donate this season.
Dani
(years diagnosed)
THE BABES
Ema(2)
Ruben(2)
Daniel(2)
Katie(3)
Mom(11)
Justin(3)
Jessica(1)
Meg
Hobie(4)
Tanner(3)
Jacob(3)
Chance(3)
Hunter(2)
Sara(2)
Jacob(2)
Anon
Logan (4)
Mandy(4)
Mandi(7)
heridetary...
her brother has one too.
Tracey
THE ADULTS
SPINE
Kathi
(2)
Marvin(1)
Loretta(2)
Anabel(4)
Carrie
MIDDLE
Kate(5)
Catherine(me) &
Journal
Mare(3)
Yvonne(5)
Jason(11)
Angie(1)
Pam(10)
Nate(7)
Kevin(23)
Sally(1)
Theresa
Cin(2)
LeslieU.
(1)
Meagan
(3)
Lavona(2)
*hereditary
Royalyn(2)
Rita(5)
Justin(7)
Jill (1)
Barry
Linda
Jen D
RIGHT TEMPORAL
Telisha(1)
Darren(5)
Andrew(4)
Sheri(4)
RIGHT
TEMPORAL & PARTERIAL
Katie D (6)
|
100+
other people know it's not "all in your head" Please join me in keeping it
real.
My name is Dani and I am 54. I am a supervisor at a medical office. My
husband and I had just returned from an anniversary trip to Hawaii at the
beginning of November this year and we were out Christmas shopping.
I started feeling a little nauseated and went to the restroom. While
there, I had the feeling that I was going to pass out (I am not a drinker). I
made my way back to my husband and fainted. The store called 911
and when I came to, I was being placed on the stretcher for the ride to
the hospital. My blood pressure has always been low and on the ride
there, it was 70 over 52.
The ER doctor did a CT and head x-rays and admitted me for observation. The
next day I had a neurology consultation. I had the sobriety test
I read about in some other stories and the neurologist ordered an MRI. (The
nurse told me they had seen something on the CT scan).
The good news they told me when they had the results was that it was "only" an
Arachnoid cyst and most likely benign. The bad news was that it wasn't
there 10 years ago when I had my last CT for migraine headaches.
The EEG I had following the MRI and my ac diagnosis showed irregular brain
activity.
When I was being released from the hospital after 3 days, I was told to
see the neurologist in 3 months and a neurosurgeon in 6 months.
I am now experiencing severe vertigo, which my MD says is from an inner
ear infection although he could not rule out the AC. A call to the
neurologist moved the appointment up to Dec. 30th. The vertigo is
so bad I walk like I'm drunk and my husband drives me to work because
I feel like everything is spinning.
Hopefully, I will get some satisfaction on Tuesday because I'm tired
of taking meds that make me so tired I can't function...they don't help
either.
I too have problems staying asleep, vertigo, nausea, and occasional headaches. I
can be exhausted and go to bed early but wake up after only 2 or 3 hours.
I do not suffer from pain.
Are we sure this is benign?
They call them benign but the long term studies such as
if surgery helps or if it hinders have yet to be determined.
| BLOG
YOUR
"FEELINGS"
MARK YOUR
TERRITORY
Join us at arachnoidcyst.net so others can feel your pain and we can get "them" to listent to us~
PINEAL
Deborah(4)
POSTERIOR
FOSSA
Bev(6)
Dawn(2)
Christi (6)
Rebecca
Karen(2)
Angelea (7)
Owen(2)
Amy(3)
Amy(5)
Dana
VENTRICLES
Jan(1)
Steven(7)
RIGHT
POSTERIER
Laureen(7)
Dani(1)
Shauna(2)
POSTERIOR FORAMEN
Jessica
(5)
RIGHT
PARIATAL
Marge(2)
Babs &
Journal
CEREBELLUM
Michelle(3)
Bill L. (2)
Tom B (15)
Adrianne
Jo-Lin(16)
Lisa
Amy
BRAIN STEM
Robin
CORPUS
CALLOSUM
Jennifer (2)
OCCIPITAL
LOBE
Rashad(3)
LEFT
TEMPORAL
(MOST COMMON)
Leslie(11)
Vicki(16)
Chris(2)
Warren(2)
Courtney(7)
Robert(3)
A
Husband's
Plea(2)
Don(5)
Melody(1)
Debbie(2)
Henry(13)
Sand(2)
Mat(4)
Alex(7)
Bill(3)
Olene(21)
Deb(2)
Stéphane(2)
Karen(3)
Lance(2)
Lisa(4)
Christine(7)
Richard (3)
LEFT OCCIPITAL
Francine
MIXED STORIES
Some people just send snippets so I put them all together here.
You can help the most by adding your story to arachnoidcyst.net |