Your donations will help us to grow. We are a foundation run by other AC sufferers. Every buck counts! Please help us and Donate this season.

Amazon Honor System
Click Here to Pay Learn More

Dani


(years diagnosed)

THE BABES

Ema(2)

Ruben(2)

Daniel(2)


Katie(3)

Mom(11)

Justin(3)

Jessica(1)

Meg

Hobie(4)

Tanner(3)

Jacob(3)

Chance(3)

Hunter(2)

Sara(2)

Jacob(2)

Anon

Logan (4)

Mandy(4)

Mandi(7)
heridetary...
her brother has one too
.
Tracey


THE ADULTS


SPINE

Kathi (2)

Marvin(1)

Loretta(2)

Anabel(4)

Carrie

MIDDLE

Kate(5)

Catherine(me) &
Journal

Mare(3)

Yvonne(5)

Jason(11)

Angie(1)

Pam(10)

Nate(7)

Kevin(23)

Sally(1)

Theresa

Cin(2)

LeslieU. (1)

Meagan (3)

Lavona(2)
*hereditary

Royalyn(2)

Rita(5)

Justin(7)

Jill (1)

Barry


Linda

Jen D

RIGHT TEMPORAL

Telisha(1)

Darren(5)

Andrew(4)

Sheri(4)

RIGHT
TEMPORAL & PARTERIAL

Katie D (6)



                        100+ other people know it's not "all in your head" Please join me in keeping it real.

My name is Dani and I am 54. I am a supervisor at a medical office.  My husband and I had just returned from an anniversary trip to Hawaii at the beginning of November this year and we were out Christmas shopping. 
 
I started feeling a little nauseated and went to the restroom.  While there, I had the feeling that I was going to pass out (I am not a drinker).  I made my way back to my husband and fainted.  The store called 911 and when I came to, I was being placed on the stretcher for the ride to the hospital.  My blood pressure has always been low and on the ride there, it was 70 over 52. 
 
The ER doctor did a CT and head x-rays and admitted me for observation.  The next day I had a neurology consultation.  I had the sobriety test I read about in some other stories and the neurologist ordered an MRI.  (The nurse told me they had seen something on the CT scan). 
 
The good news they told me when they had the results was that it was "only" an Arachnoid cyst and most likely benign.  The bad news was that it wasn't there 10 years ago when I had my last CT for migraine headaches. 
 
The EEG I had following the MRI and my ac diagnosis showed irregular brain activity. 
 
When I was being released from the hospital after 3 days, I was told to see the neurologist in 3 months and a neurosurgeon in 6 months.
 
I am now experiencing severe vertigo, which my MD says is from an inner ear infection although he could not rule out the AC.  A call to the neurologist moved the appointment up to Dec. 30th.  The vertigo is so bad I walk like I'm drunk and my husband drives me to work because I feel like everything is spinning.
 
Hopefully, I will get some satisfaction on Tuesday because I'm tired of taking meds that make me so tired I can't function...they don't help either. 
 
I too have problems staying asleep, vertigo, nausea, and occasional headaches.  I can be exhausted and go to bed early but wake up after only 2 or 3 hours. 
 
I do not suffer from pain.
 
Are we sure this is benign? 

They call them benign but the long term studies such as if surgery helps or if it hinders have yet to be determined.

 

 

BLOG
YOUR
"FEELINGS"

MARK YOUR
TERRITORY

Join us at arachnoidcyst.net so others can feel your pain and we can get "them" to listent to us~

PINEAL

Deborah(4)

POSTERIOR
FOSSA

Bev(6)

Dawn(2)

Christi (6)

Rebecca

Karen(2)

Angelea (7)

Owen(2)

Amy(3)

Amy(5)


Dana

VENTRICLES

Jan(1)

Steven(7)

RIGHT POSTERIER

Laureen(7)

Dani(1)

Shauna(2)

POSTERIOR FORAMEN

Jessica (5)

RIGHT
PARIATAL

Marge(2)


Babs &
Journal

CEREBELLUM
Michelle(3)

Bill L. (2)

Tom B (15)

Adrianne

Jo-Lin(16)


Lisa

Amy

BRAIN STEM

Robin

CORPUS
CALLOSUM


Jennifer (2)

OCCIPITAL
LOBE

Rashad(3)

LEFT
TEMPORAL
(MOST COMMON)


Leslie(11)

Vicki(16)

Chris(2)

Warren(2)

Courtney(7)


Robert(3)

A Husband's
Plea(2)

Don(5)

Melody(1)

Debbie(2)

Henry(13)

Sand(2)

Mat(4)

Alex(7)

Bill(3)

Olene(21)

Deb(2)

Stéphane(2)

Karen(3)

Lance(2)

Lisa(4)

Christine(7)

Richard (3)

LEFT OCCIPITAL

Francine


MIXED STORIES


Some people just send snippets so I put them all together here.

You can help the most by adding your story to arachnoidcyst.net

The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 66820
Los Angeles, Ca 90066
1-(800)-493-5022
11am-10pm PST Weekdays

PLEASE REALIZE THE TIME DIFFERENCE
Please read through this site before calling as your answers very well could be here already.
No we do not have printed materials, you will have to print out this site.
Amy and Catherine are giving telephone suppport at this time. Amy for emotional support and Catherine for MRIs.
If you didn't find the info you need on this site or arachonidcyst.net please do call.
Please donate


Amazon Honor System
Click Here to Pay Learn More

 
This site was designed and is maintained by Miss Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back!