For the first 8 months of her life she would not go to sleep unless she was on my chest.

When she was 10 months she had a seizure. Her eyes were rolling and her left side was shaking for about 15 min. Then her body went limp. She had her eyes wide open but she wasn't looking at anything and her body was lifeless. She remain this way for 1 hour and 30 minutes.

The doctors did an xray, CT scan, spinal tab and then we got transfer to another hospital. I gave everything so that the Doctors could look at it. They only glance at it and gave it back to me. They told us we could go home and that they will call us to get a MRI. Nobody called us the next day. I had to keep calling them and got no where.

October she had seizure number 2. It didn't last long and the only way I knew she was having one it was because she was sad and her eyes were tried looking. The Doctors kept overnight at the hospital. Did another spinal tab and lots of blood work.

December - I got her first MRI and Dr. visit with the specialist. He notice the cyst. The cyst is located on the right side on the back of the head.

I ask if that was the cause of the seizures.

He said no..

My daughter has had 5 seizures. Most of the time her seizures comes first before the fevers. Three Doctors have told me that the cyst is not the cause of the seizures.

My daughter pinches her self all the time. If anybody holds her she pinches them. She is always sucking on her tumb. Sometimes she lays on the floor on her belly with her feet cross over and puts her self to sleep that way. She has mood swings. Her speech is far behind.

My husband and I thought it was her personality. Now I believe she acts that way because she is in pain and can't tell us.

I want to know what to do.

My doctors are military doctors.

These Doctors don't listen, don't have the time, and show little care for the patients. I did go out in town and that was not much help.

What is the worst outcome if the cyst is really bad? Will she need it drain out or will she have surgery?

Please contact me at 310-745-7422 ~Catherine .

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The Arachnoid Cyst Foundation
c/o Catherine Clay
PO Box 66820
Los Angeles, Ca 90066
1-(800)-493-5022
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Please read through this site before calling as your answers very well could be here already.
No we do not have printed materials, you will have to print out this site.
Amy and Catherine are giving telephone suppport at this time. Amy for emotional support and Catherine for MRIs.
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This site was designed and is maintained by Miss Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back!