Your donations will help us to grow. We are a foundation run by other AC sufferers. Every buck counts! Please help us and Donate this season.
THE BABES Sara(2) Mandi(7) MIDDLE Catherine(me) & Lavona(2) Justin(7) Andrew(4)
|
Hi im Andrew 28 years old from Wales in U.K.I have a right temporal lobe Arachnoid Cyst.I started to get symptons with it at the start of 2001 i had a pulsating noise on the right sight of my head which made it
difficult to sleep and i started to sweat a lot at times it gets really
bad it drips off my hair and off my face its really embarassing.Then
i gruadually got more problems i started get spots in front of my eyes,vomitting
every morning,neck and shoulder pain,loss of feeling in hands and feet
and was feeling exhausted all My work started to really suffer and from May 2002 i have not worked at all as i was struggling to cope with it the pressure headaches were getting worse all the time.Its really runing my life and i need to get it sorted so i can lead a normal life again. At first when i went to see
my GP they thought i may have sinusitis but after seeing a ENT consultant
nothing showed up so i went for a brain scan which showed up my cyst.Of
course at the time the And said an operation would be far to much risk as the chances are i wont feel any better after it so he referred me to a Neurologist who tried me on various medications all of which failed to make much difference to how i was feeling. As time as gone on ive been feeling more and more depressed and it hasnt
been helped by the I decided to make another private appointment with my Neurosurgeon in April and saw him for a consultation on 30th of April and for the first time in ages i got some positive news.He finally seemed to agree that the Cyst was the cause of my symptoms and that an operation would be best and gave me a date for it of 23rd of June this year.This was the best news i could have but that he dashed my hopes last Friday say he had spoken to another colleague of his and they had decided they still were not convinced that the cyst was causing my problems and wanted to explore other options and told to i would be going to see a consultant at a "facial pain clinic". Have you ever heard of such a clinic
before and if so is it any good or likely as i suspect to be a waste
of time and the N/s is just passing the buck.They really seem to be doing
their best to annoy me and i cant put up with much more of them messing
me about.Im sure you know exactly how it feels. My phone number is 447969105633 and my Yahoo is andrew19752003 Thanks for helping all us sufferers out with your group and support Andrew | BLOG MARK YOUR PINEAL VENTRICLES Steven(7) Shauna(2) RIGHT CEREBELLUM Tom B (15)
BRAIN STEM OCCIPITAL LEFT
Chris(2) LEFT OCCIPITAL You can help the most by adding your story to arachnoidcyst.net | |||||||||||
c/o Catherine Clay PO Box 66820 Los Angeles, Ca 90066 1-(800)-493-5022 11am-10pm PST Weekdays PLEASE REALIZE THE TIME DIFFERENCE Please read through this site before calling as your answers very well could be here already. No we do not have printed materials, you will have to print out this site. Amy and Catherine are giving telephone suppport at this time. Amy for emotional support and Catherine for MRIs. If you didn't find the info you need on this site or arachonidcyst.net please do call. Please donate |
|||||||||||||
This
site was designed and is maintained by Miss
Catherine Clay She has recently had a child and is not the best communicator at this time. Please be patient and call or e-mail back! |